“Understanding Rett Syndrome: A practical guide for parents, teachers, and therapists”, B. Lindberg, 2006

FOREWORD (ix)

PREFACE (xi)

PREFACE TO SECOND EDITION (xiii)

1 INTRODUCTION

1. Background (1)
2. My Own Background and Personal Inducements (3)
3. Aim (4)
4. Sample (5)
5. Methods (6)

2 A GENERAL OUTLINE OF THE DEVELOPMENT AND PROGRESS IN RETT SYNDROME (9)

3 A BRIEF PRESENTATION OF THE INDIVIDUALS IN THE STUDY (11)

4 AN ACCOUNT OF TYPICAL SYMPTOMS AND BEHAVIORS (21)

1. Deficiencies in Perception and Sensory Integration (22)
2. Stereotypic Behaviors (32)
3. Dyspraxia – “Want of Success” (35)
4. Severe Motor Disabilities (37)
5. Difficulties in Coordination (44)
6. Mental Retardation (50)
7. Communication Disorders (60)
8. Emotional Channels (71)
9. Large Fluctuations in Behavior (73)
10. Emotional Reactions (76)
11. Insecure Identity (78)

5 GUIDELINES FOR TREATMENT AND TEACHING (81)

1. Two Principal Teaching Groups (81)
2. Multihandicaps (84)
3. Understanding the Environment (85)
4. Using the Body (98)
5. Interacting and Communicating with the Environment (118)
6. Being Active (130)
7. Expanding One’s World (141)
8. Postscript (163)

APPENDICES (165)

1. Questions Forming a Basis for Interviews with Parents (165)
2. Questions Forming a Basis for Interviews with Parents/Care Givers (168)
3. Questions Forming a Basis for Interviews with School Personnel (179)

REFERENCES (183)

INDEX (185)